Sunday, August 5, 2012
I survived!!
I survived Day 1 (Round 1) of my chemo treatment. It went well. Mom and dad took me. I felt good overall when I came home. My brother and sister-in law came to visit and spent time with me. It was nice. I talked with my friends Eric and Denise on the phone. And e-mailed all of you nice people who surprised me with your generosity!
Saturday I was feeling pretty good too. A little tired. I had to go back and get my Neulasta shot. Almost got my Luperon Shot (My insurance company approved it late Friday night --it should have been approved Friday ) But they could not get access to it, so will call Monday to try and go in that day to get the shot.
S0 over all yesterday I was a little tired, and a little nauseous, I took the pills for nausea twice. I went on two of my 3 walks I was supposed to take for 10 of the 15 min. But I do not think that is bad considering I don't ever really exercise. (hehe) Also my mouth is constantly dry, so I have been rinsing it with Act Mouth was for Dry mouth and it helps, as well as drinking water. Also I am a little sore, like muscle soreness.
This morning, still a little tired, not really hungry, but then again I am never hungry. I always have to force my self to eat. BUT I know it is more important than ever to eat now. SO I am going to force my self to. I am going to get some yogurt with granola.
Not sure what else to expect, but I am good. Thanks everyone!!
Friday, August 3, 2012
What a Day!!!
I was never to expect the love and support I received from so many people today...and it all came from me ranting and raving this morning frustrated with my financial situation due to my bills that have resulted from this "Cancer" and my Migraines. Like I said I just can not catch a break in the financial department with my medical issues. My insurance company just sucks....and due to having to have my own, and being denied from a pretty good one when my Cora was up in February 2011, I had to get this sub par insurance with crazy deductible, co-insurance, and co-pay for all visits after the deductible being met (30% of allowable charge until your out of pocket is met.) CRAZY!
On top of it, I work with Insurance companies, who are back-logged and have out-standing payments owed to me for clients I have seen in March, April, May, June, and July...well and of course the two days in August. SMH!! So that is a big reason I am stressed with the money situation. I never know what I am going to get paid, when, but the bills keep coming in, and need to be paid. Not to mention when January rolls around my deducible starts over again and I may need surgery, radiation, and I will have to continue to receive on of the cancer infusion drugs ever 3 weeks until Next August.
BuuuuT let me get to the love part and get away from the stress part. I was sitting in the pretty nice infusion chair (well as nice as they can be.) The are semi reclinable...push back and legs lift up. I brought my down pillow, and my hokie snuggie. I did not put my arms in the sleeves...but I did cover my legs up. My nurse who took care of me, said she wanted to have me because her daughter went to TECH, and said Once a HOKIE always a HOKIE, and knew I would be cool. :-) :-) ;-) there.
So chatting with my mom, having a snack or too. I was checking my e-mail and they were links to something I did not quite understand. Then I was like...urg? twisted me head until I read what LORI had written. She made tears build up in my eyes, at the sheer generosity and sheer kindness she had thought about in doing this. Lori, as she/ you had said we are kindred spirits.
Lori and I meet, over 10 years ago at a HOKIE tailgate via a guy I "dated" whom was was a mutual friend of many of my guy friends in the HT's. She has always had a great big heart and always been doing super special things for those she cares about. I meet several other wonderful ladies through her and for a few years when we all were around we did lots of "fun" girl things." OHHH I miss those days.....
Lori Started this Page for me, to help raise money to help me out with my financial obligations so I did not need to be stressed about it. http://lorihokie.blogspot.com/2012/08/blog-post.html Like I said I was in shock. But what came more in shock, an still is in shock to me...is how many people are actually donating and the amount at which you are donating. I know everyone is struggling these days and everyone has it tight. Don't feel pressured in any way. I would love to hang out with you or spend time doing something for "free" like a museum, or go hiking, or phone calls or whatever. But it is awesome to see people do things like this with people I have not spoken to in a long time, and with people I see once or twice a year or with people I have never meet but on facebook. I would love to meet you!! If I don't have a mailing address be expecting an e-mail from me to get your address to thank you. Because you made me day!! Everyone who has helped out has made my day!
My stress has lowered so I can concentrate on getting better and resting, so I can concentrate on my clients who have so many problems, anxiety, depression, marriage issues, parenting problems, behavior problem, suicidal problems, drinking problems, etc. I want to be at my best s I can give them the best. Because that is what makes me feel the best.
I want to feel less stress so I can want to want to take pictures....I love taking pictures...but have lacked the energy, from this and just trying to get life squared away.
So everyone. GOD BLESS. Cancer was the last thing I wanted, but it surely showed me that I am loved and how much love and support people truly give to their friends and supportive network when in need.
I LOVE EACH AND EVERYONE OF YOU. AND A BIG SPECIAL HUG to LORI for not only doing this, giving me earrings, the t-shirts....but she also got me a True Hope Moxi girl (which in time I will get a pic of) who has a bald head, to cheer me on my journey!!
I love you Lori!!!
The Big Day is Finally Here UGH!!!
Me getting ready at home...
It seemed so far away and now it is here. As I sit here and type this morning getting ready...well before I get ready...as I get ready...it starts off at 6:45. I have a slight headache. I did have this one a little last night....
Eric went with to have my last sushi at Red Curry in Old Town Alexandria. It was pretty good. I was disappointed in the Spicy Tuna. But everything else was good. Why can't Spicy Tuna have real Tuna and just be spicy. Not mashed up mush??
My parents are picking me up at 10, so I have about 3 hours to get ready and pack up some things. That kinda stress me out. Why does it feel like I need to make sure I "bring" enough stuff like I am "packing for a trip." I guess I just don't want to be "bored." Especially since I know I have to be there for 5 1/2 hours and I don't really know what to expect this time around.
So It's now 8:34 and I paid some bills with the money I do NOT have. Have to ask for some money this month from the parentals to help pay for my rent. I have not had to do that for the last two months, and I loved!!!! that. I was finally feeling like I was getting back on my feet, and then BAM!! Damn it!! I have bills I can't pay for almost $900 worth, had to keep my student loan still on deferment, uh what's it now, going on 2 1/2 years now, and have two $3000 hospital bills I pay monthly installments to. It's Like UGH!!! I actually am worried something is wrong with my truck, so please pray that there is nothing wrong because I seriously can NOT pay to get it fixed!!!
I did also get some lovely support from a lovely friend and her husband. It was so thoughtful and wonderfully appreciated. The gift will help so much because it just makes me know that you two know how much I need the boost. Everything you guys have done, especially you Lori has been wonderful. They words, the earrings, the shirts and the extra gift that John thought of. Not necessary but GREATLY appreciated!!!
So now I am working on packing some snacks for me and my mom and dad, as my dad if I am up to it will get lunch. I have carrot sticks, apple wedges, apple sauce, yogurt, jello, pudding, and cheese its. And water of course.
So now Just ready for mom and Dad. Will update there.
Mom is bringing me the 50 Shades of Gray Books to read. I will try my Hand at them.. She has read the first two. So we will see. HAHA. I will have my phone. I may sleep I am tired. I am bringing a pillow and my HOKIE snuggie. I also am bringing a Teddie bear. Go figure.
Love you all and thanks for being supportive all of you from near and far!!
Monday, July 30, 2012
Slightly Disappointing News...But Countered it with a Good afternoon!
Got a call from the Nurse at the fertility place and they were only able to freeze 5 of the 6 eggs they retrieved. Not sure why...did not ask...but I
that is not a big deal. Like a friend said, "it only takes one." And this IS only supposed to be my BACK up. I am hoping I won't NEED to use them at ALL. :-)
So today I had my LAST Indian buffet, for 4 1/2 months. I will greatly miss them!! I can't have any sort of buffets, or professional manicures/ pedicures (which I got my last one of those on Saturday.) Sushi, or any raw meat. until after Chemotherapy is finished. So hopefully someone will have Sushi with me one more time before Friday. :-) I have had it several times in the last two weeks. LOVE it!! haha!!
So today I had my LAST Indian buffet, for 4 1/2 months. I will greatly miss them!! I can't have any sort of buffets, or professional manicures/ pedicures (which I got my last one of those on Saturday.) Sushi, or any raw meat. until after Chemotherapy is finished. So hopefully someone will have Sushi with me one more time before Friday. :-) I have had it several times in the last two weeks. LOVE it!! haha!!
Sunday, July 29, 2012
My little Pin Cushion
So the last week was quite interesting. My belly sure ended up feeling like a pin cushion. I WAS able to give myself shots in the belly, imagine that. I had to give myself shots starting on Saturday July 21 through Friday July 27th. One shot of Lovenox, A shot of Menepur, and one of Gonal F. Then I got to add a morning shot of Cetratide. YAY!!, Alternating sides and below my belly. It was so sore by the end of the week. I had to go every other day to get labs and an ultrasoundn done, and then the last three days, went every day. They 36 hours prior to my EGG retrievl day (TODAY), My mom got to give me a shot in my upper buttocks. That did not hurt while she was doing it, bt now is sore, like I fell on it. That was what they referred to as the "Trigger shot."
My retrieval time was 8:00am in Rockville. I had to be there at 6:00am. Mom and dad picked me up at 5:00am. I really did not go to bed at all. Maybe an hour. Eric and I hung out from 12:45 until 3:00 and I took a brief nap.
Today for the retrieval we were not sure exactly where to go I knew it was the Rockville Fertility Center, but where, the building looked all dark, and there really were not that many cars. I had to call the 24/7 on call nurse. I woke her up..whoops! :-( I know how that feels. I have been on call before....A LOT!!! But. The whole actual procedure took 20 minutes after they checked me in, gave me the IV and I waited. Once the injected the anesthesia I was out after saying my social security number.
They were able to get 6 really healthy eggs from 6 follicles that grew! They said that was really good. SO I guess I will take them for their word. I am sore and crampy. Tired too. But that is done. Now onto the Chemo on Friday!! I CAN DO THIS!!
Sunday, July 15, 2012
Stress, Stress, I need to Destress
So Friday 7/13/12 was a mixed day for me. Yeah, Friday the "13th" What a day!! I was hoping for some good news for my Fertility Treatment, that I could start my fertility treatment, so my Chemo treatment could start as planned, but did not receive the good news from them. My testosterone was too high and we have to wait until Tuesday to try again to start the treatment. And to top it all off, my period still has not fully started. I have spotted a little on Saturday and a little today, but not a whole lot. I am trying to stay destressed. I am trying to be relaxed. But this is soo hard when you want something to happen and it has not happened AND with everything else that has been going on.
I did however get good news from my MRI biopsy. It was benign. Nothing to worry about. I was not to worried. Well maybe a little. But I am glad it was good news all in the same. :-)
I spent Friday being relaxed after that appointment. I went to lunch with to ex-coworkers. I had a great time. It was so great to see them They told me that they were going to give me a gift certificate to "Let's Dish" so I can get pre-prepared food when I start my cancer treatment. This is going to be very helpful for me, as I won't want to cook and I can just pull these out of the freezer and make them. Plus they are pretty nutritious.
Then I went to buy one of my Wigs. OH my goodness!! They are sooo expensive!! $750 for one synthetic wig!! UGH!! Luckily my insurance company will reimburse $350 of that, but still!! I will still have to get stuff for cleaning and care for it, but wow!! Plus I am sure I am going to want another one in a different style. Mine is about shoulder length in red and blond highlights with some darker low lights. Looks real and cute if I do say so myself. :-) It should be in by 7/24/12.
Saturday 7/14/12 I met with Debi for lunch and that was nice. She gave me some Arborne products. I am excited to try these. She talked with me about how a few others have used these products who had cancer. I was waiting to hear back from my friend from Canada but did not hear from her until late, so I finished my leftovers from the other night, did laundry, and read in bed for the night.
Today 7/15/12 I went to the pool, our pool had an omelet and bloody Mary bar. Relaxing, but it was hot.
Friday, July 13, 2012
Biopsy, Echocardiogram, Fertility Testing Oh My!!
So since my last posting it has been a little crazy to say the least. I have wanted to post, but I have been running around a bunch. Let me fill everyone in on what has been going on in Jenna land.
I had a fairly relaxing weekend. I went to the pool during the day on Saturday. Then I meet up with two beautiful girls in Bethesda. (Bebe and Tara) and had a wonderful girls night out. We had a drink at the Barking Dog. And then had Tapa's at Jaleo. YUM!! We met an guy who was very talkative and had an artistic talent with regards to paper. I personally did not mind him, although Tara did not like him to much. :-)
Sunday was spent relaxing, doing laundry, cleaning a bit, picking up prescriptions and going to the grocery store.
Monday 79/12 Was very busy. I had two medical appointments. I started the day at 8:15am to get my mediport checked. Everything was okay there. They needed to make sure it was healing okay. I asked questions about what signs I needed to look for, in case of infections. As I am at risk of blood clots. She said, fever, soreness in the arm, no muscle tone, swelling in the arm and neck.
After that appointment I had to go to have an echo cardiogram. This appointment was at 9:40am This is where they basically look at your heart with a sonogram machine. The appointment was to last about 40min. You lay on your left side propped up with some cushions, laying your head on a pillow. 97% of the way in to the procedure, the power goes out in the building and the building next to us. The office is in Fairfax across from Fairfax Hospital. I was told to wait on the table for about 5 min until they could figure out what was going on. They were all walking around with their phones using the flashlight apps, it was very comical. I got dressed by *my* flashlight app, and was escorted out. They said they got the most important scans.
I then went on to work and had four clients that day from 11:30 - 4:00.
on 7/10/12 I went in for my MRI biopsy. Let me just tell you, this was a bizarre experience. So it starts off like the regular Breast MRI, except only my right breast hung through the opening. They started the scan like they usually did, administered the dye when they needed to, until they found what they were looking for, and then pulled me back out. All the while I needed to remain still. Then they cleaned off the area, pricked me with the anesthesia drug and numbed the area asking me if I still felt anything. I said no at some point. The she said I would hear a drilling sound when she was putting the biopsy needle in. This was different than the other biopsy. At some point I began to feel it. I felt burning. She had to stop and give me more anesthesia. But was so nice. Quickly did that, apologized. And then started up again and it was over real quick. The put a marker in. Mary the nurse clean the area and bandaged it, and then took me upstairs for a Mammogram for images of the marker. After that she cleaned the area and put gauze on it. She gave me instructions for the next few days and sent me on my way.
I went to work for a consult from 10:00 - 10:30 came home and then went back to work from 4 - 6:30.
On 7/11/12 I went to the Fertility Clinic as scheduled as I had thought I had started my period on Monday 7/9/12. But it stopped 7/10/12 and did not reappear. But they went forward with the blood work and ultrasound anyway. It came back that my hormones were not ready and it might have just been a false start of my period due to stress. They wanted me to come back today 7/13/12 to check again. I then had a 11:00 client and a 12:00 consult. I was supposed to have a client at 4:00 but at 3:00 they canceled because the little girl had a fever. So I went home early. That night I met up with a great old friend from high school, Shannon, who is in the states from Canada. It was great fun visiting with her.
7/12/12 My day started off very nice, I got to have breakfast with a college buddy, Clay before I went to Therapy. We shared Bagels. Then I had Therapy before heading to a long day of work. I worked from 12:00 - 6:00 Three clients and 2 consults. I had a date at 7:00. He was really nice and I hope I get to see him again. But I think it will be hard to explain the whole cancer think. I don't know how to do that, and what he will think. Or when to do that.
7/13/12. I have no clients today. YAY, except, this week was one of the smallest amount of clients in a long time and that does not bode well with my budget. I really need to get more clients that (10 a week) I need 2x that many. UGH!! But today I went back to the fertility clinic and my period I think is beginning...and we are set to begin today. So I am to take the Femara pills tonight with the Lovenox shots. Then in two days begin the Gonal F and the Menopur shots.
At 12:00 I am going to meet up with two old work buddies for lunch in Alexandria and then I have an appointment to talk with someone about wigs. So a busy day. :-)
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