A Wonderful Surprise....Cancer Free???

SOOO, the 16th of January has come and gone....and I survived the procedure!!!  I had to be at the hospital at 10:30am.  My surgery was supposed to start at 12:30pm.  It however did not start until closer until 2:30/ 3:00pm.  I meet with both Dr. Spear, Dr. Tousimis and their teams prior to the surgery.  Both Dr. Spear and Dr. Tousismis made markings on my breasts.  While waiting felt like it was a "hurry up and wait game having had to be their at 10:30.  I was ready, I was hungry and thirsty...I had not had anything to eat since midnight the night before.  People kept coming and asking me the SAME questions OVER and OVER again....checking my wrist band, making sure I knew my name and birthday. 

Finally The anesthesiologist came. I had to convince her to put the IV in my arm....she wanted to put it in my hand...NO Way was I going to let that happen.  Man they hurt there...and especially with the Neuropathy,it would be killing me.  But she had to put it in the right arm!  SMH, kinda dumb considering I am right handed. 

Another 30 - 40 minutes pass before they take me back for surgery.  I am wheeled back in a wheel chair.  I remember helping myself onto the surgery table and laying down, but that is it.  The next thing I remember is waking up in recovery.  In recovery I am in PAIN, SHARP pain, especially on the right side.  Soon my parents are allowed back into recovery with me, I struggle to stay awake.  While waiting, I get a call from some people checking on me to see how I am doing (thank you) and the nurse gives the information to the room I am being moved to.  I am coming in and out of it, as they are giving me some good pain meds!!  I am then brought upstairs to my room and my parents come with. 

Although it is late and my parents leave, I struggle with sleeping.  I am hungry.  I drink lots of water, do go to the bathroom a few times, but am not given anything to eat except some crackers due to one of the meds I was given.  I am given lots of pain meds, as I had very tight pain, especially on the right side.

My roommate was loud.  She was coughing, her IV was going off twice as many times as mine.  Mine went of each time I bent my arm, which was why I was annoyed they put the IV in the right arm and not the left.  So they taped my arm to an arm board so I would not bend it. I tried to sleep....but that really did not happen.  I think between, the beeping of my machine, my roommates coughing, her beeping machine, the lights coming on on her side, doctors coming in on my side, and the nurses phone ringing, I could sleep 20 min at a time.

By breakfast time I was hungry....but it was nasty...cold SW scrambled eggs, some type of cold potatoes (actually OK), cold oatmeal (nasty), and cranberry and apple juice.  The internists and medical staff from the teams started to come and talk to me.  I also saw Dr. Tousimis.  Everyone looked at the surgery...they said it looked great.  I was told it went great!! 

I was told....when Dr. Tousimis went in to remove the breasts she did not see any cancer and removed extra margins beyond the spot to be extra cautious.  She said I have nice skin too.  I was taught how to drain (fun) the four drains.....they look like little hand grenades filled with red liquid.  Got to come home the day after surgery.  I have pain meds, some antibiotic, and a shot I have to give myself courteous of the hematologist.  (Not to bad, since I am so used to it from the fertility treatments.)

So we have been doing the drains, emptying them out (have four of them)....pain comes and goeson my sides and some in my upper chest area.  I am tired but can't sleep. I think all is going to be good though.

Have an appointment Tuesday with Dr Spear and Thursday with Dr.Tousimis.  Should get the drains out at either of those appointments.  I will find out when I go back with Dr. Spear to get the implants put in.  (I think he said 3 - 4 months, so around my birthday). 

Oh and another wonderful thing has been happening....I have been getting these great cards from all these wonderful people through an organization called "Give a Smile Today."  It is so great to receive cards from all over from a whole bunch of people. 

90% Risk Free

New Boobies = New Beginnings = No More Cancer (hopefully)



So I have not been "blogging" in a long time.  I have not been doing anything worth you all hearing about I guess.  The same ole, same ole.  Working and trying to pay the bills.  November 16th, as you saw in my last blog was my last Chemo treatment!!  YAY!!   I have had 2 treatments of just Herceptin.  Both of those treatments went well.  No side effects from these treatments, however I am still trying to recover from side effects from my first and last two rounds of chemo.

The last two rounds of chemo left me with Neuropathy in my hands and feet.   My hands continue to get numb, tight and stiff throughout the day and night. I loose sensation in my fingers where it is hard to feel things as you normally would.  (It's hard to explain.  I can feel that it's there, but the sensation is different.)    Sometimes my hands also are super cold as well. The pain often extends up through my arm. I have a hard time bending my fingers. These symptoms are worse in the morning and when I wake up.   It really helps when I either massage my hands, have someone else massage my hands or I use a squeeze/ stress ball.  My feet also get numb, sensation is also lost in my feet (much like when your feet falls asleep from sitting on it too long), also it feels like my feet get super hot and super cold, even though the temperature of them has not changed, pain extends up my legs as well.  My ankles crack and toes are sore.

I also am retaining water.  My ankles, legs, face, and body is slightly bloated.  I have been unable to wear my shoes at times.  For one week I had to wear slippers.  I bought Dr. Scholls For Her Fast Flats.  (They look like ballet shoes, but are a little more sturdy.)  Now I can wear shoes again for most of the day, but by the end of the day my feet are swollen again and burning. 

I have been given meds for both....but it is going to take a while for them to help, more so the meds for the Neuropothy.  I was told that rebuilding the nerve cells takes time.  It could be 4 months to a year.  UGH!!! Not Fun!!

 

 

My first treatment as you remember I started to loose my hair....well, it has started to grow back!!  Yay!!  Slowly...but it is growing back.  It is so soft.  I love touching it.  I think it is like 1/4th of an inch.  A few strands may be a bit longer.  I am so ready for it to be longer.  I am still wearing my wigs.

Now let's get to the fun stuff!!  I have gone to my plastic surgeon (at Georgetown), my oncologist, my original breast surgeon, a new breast surgeon (at Georgetown), a hematologist and had a pre-op for surgery.  I had to schedule and meet a new breast surgeon because I wanted to have my plastic surgeon do my reconstructive surgery, and he only practices at Georgetown.  My Breast Surgeon only practices at Fairfax.  I like my new Breast Surgeon.  My Plastic Surgeon (Dr. Scott Spear) recommended my breast surgeon (Eleani Tousimis), also at Georgetown  (she was also just on CBS talking about the #MissUSA who is also going to have a double mastectomy.  I am also scheduled to have an MRI on Sunday at 8:45am.

 

 So the big day is December 16th.  I have to be at Georgetown at 10:30am and my surgery starts at 12:30pm.  I am having a bilateral nipple sparing mastectomy with immediate reconstruction using allerderm (tissue expansion.)  I will have to be in the hospital that night at the minimum; one night more if I need it.  The 18th, in the afternoon, I have a herceptin treatment.  UGH!!  I was told it would take at least a week for me to have tubes which need to have tubes which need to be drained.  Depending on how well I heal, I will try to go back to work after a week, otherwise I will take off more time.  I really can't take off more than a week due to 1.) Needing the money to pay all the bills.  2.) My clients needing me.  I don't want to take more than a week not seeing them.

 

While I am laid up for a week or more, my wonderful co-worker/ boss and office manager are giving me movies (Twilight and several Romantic comedies) and some great full TV series to watch (Big Love and Sex and the City).  Hopefully my girlfriend Denise will be able to come up and take care of me, otherwise my mom will be taking care of me.  I hope to be able to stay at my place, as I want to sleep in my own bed.  It would be so much better!!! While I am laid up, please feel free to contact me, e-mail me or call!!  I would love to hear from you!!

So all of the doctors appointments, the herceptin treatments and the surgery will probably max out my deductible and out of pocket payment for my health insurance right at  the start of January.  My deductible is $2,500 and my out of pocket is $5,000.   Each Herceptin treatment alone is close to $9,000.  I have no idea how much each doctors visit is going to be, how much the MRI will be on the Sunday before the surgery, how much the pre-op appointment will be, nor how much the surgery will be.  But I do know that when I stayed in the hospital last January for my migraine in the ER, the bill was over $8,000.  I am sure this surgery will be way more than that.

 

I will have to pay for my bills up to the first $2500 (my deductible), then I pay 30% of the fees until I reach my out of pocket maximum ($5000).  By the end of January 18th, I think I am going to reach that, and I have NO idea how I am going to pay it!!  I surely do not have that kind of money.   I am still trying to pay back my medical bills from last year, despite all of everyone's help.  I still have several thousands of dollars left to each one.  AYE!!  Also I am going to have to start paying my student loans, which I have been lucky to defer for a long time.  My deferment period is going to end in March and I have no extension time left.  I just want to get out of debt so that I can enjoy life and do fun things.  I want to be able to go on vacation.  I want to be able to not feel guilty for eating out.  I want to not feel guilty if I buy anything that is not a necessity.  I feel like I have to work consistently

so that I can make as much money as I can so I can pay back my bills. Money is always on my mind, and I don't want it to be.  I have the lowest cable, internet, and phone plan possible.  I eat and buy as little as possible.  I rarely buy anything new in regards to clothes or gadgets/ items.  I have not been on a vacation in a long time.  My parents pay/take me to the VT Hokie games.  I save up/ put on my credit card a trip to go see a friends wedding, but do the shortest trip possible and try to do the cheapest way I can.  Hopefully one of these days money won't be as big of an issue and.  Hopefully I can feel like I can save money and feel free to enjoy some life too.

The Final Chemo Treatment

Today I had my Final Chemo Treatment!!!  Yay!!!  These past 3 months have gone by soooo fast! I can not believe it.  I am so excited!!  Just need to get over this one week hump of super bad feelings after the chemo and I can manage the other two weeks before my hair starts to grow back. 

 

 

I have a meeting set up with my plastic surgeon in 10 days, so hopefully by the end of the year that can be taken care of.  I will also have to go back every three weeks for Herceptin, but my oncologist said there is no side effects from this and I can go back to eating and doing all those things I had to stop doing.  (Sushi, manicure pedicures, Indian Buffets, Brunch Buffets, etc)  :-)  And as mentioned my hair will start to grow back!!!  I am so excited to have my hair grow back and see what color and style it comes back as!!

 

I still need to contact my Cancer doctor to see what tests need to be run, and will do that Monday, so hopefully I can get that in before my appointment before my surgeon sees me, so nothing will mess up surgery.  I will let everyone know the plans.  I would like to start off 2013, with a FRESH start!!  Be Cancer Free, with new boobies!!! 

 

Thanks again for everyone's support!! I meet some of you recently who have supported me who are new friends and it is great!!!  Can't wait to meet a few more of you!!  A positive attitude sure has helped a lot!!  It has passed the time and made me forget about the struggles.

 

Here is to a good quick week and three week period until my hair grows back!!  YAY!!!!

 





Chemo Class and Follow up with the Surgeon

I woke up this morning in excruciating pain, no joke....I felt like I was having a heart attack, but on my right side...so I knew it could not be.   My chest was tight and I could barely move. It hurt to breathe.  Where they had inserted the Mediport was killing me.  All of the pain meds wore off.

I call my  parents at 6:00am, my mom answers the phone and tell her I need them to take me to my appts today.  I get up and get a new icepack, take some pain meds and lay back down until my alarm is set to go off. 

I get ready, still in pain and 40 min until my appt for my Chemo class, my parents have not shown up....they are usually early for things...and I was starting to wonder what was going on.  I call my dad's cell, and he was still at home. They did not "know" (forgot) that I had the 9:00am Chemo class.  They only thought I had the 11:30 follow-up meeting with my surgeon.  UGH!!  I was tired, in pain, and irritated.  NOT a good combination.  I tell my dad to forget it.  My mom calls back and I end up yelling at her through tears.  Telling her what appt I am going to. 

Feeling incredibly guilty while I drive still in pain I go to my oncologists office where I thought the Chemo class was.  When I get there, I was told the class was across the street.  Of course I got in the wrong lane, traffic was horrible...and it was making me late for my appt. I hate being late.

Chemo class was informative, and I learned a lot.  I was able to ask questions.  I felt a bit more reassured of the process.....despite not having my time line for Chemo set out.  The Nurse who gave the information was super informative and super nice.  She was reassuring, calming, and really was available for everyones individual needs.

I then went over to the surgeon's appt, met up with mom and dad.  That appt went well.  My incision from my sentinel lymph node surgery is healing well.  She said I won't need to see her again until closer to the end of my chemo procedure.  This is where we will talk about the mastectomy or partial mastectomy and pick a plastic surgeon. I know who I want to be my surgeon is what I am thinking....
ugh, thinking I still need to write my letter to him.

Mom and Dad, love them both......drive me to work, after we eat lunch at one of my go to restaurants near my home "The Coyote Grill."  I get tons of facebook messages from my friends, which always uplifts me.  Makes me smile and keeps my spirits hi.  Knowing the support I have, and knowing that so many people are praying and thinking of me.

Another Surgery

This morning I went in to have my medi-port inserted in my chest.  My arm still hurt from the surgery last Friday, my breast was still black and blue and hurt from the biosy from last Thursday.  But I was okay in in pretty good spirits.  Like I have mentioned before, I am an old pro with surgeries and hospitals, having had so many in my "short" life.  :-)

Went in for pre-op, not as many doctors or questions, but similar process as before.  This time however I was awake during the prep-time in the operating room.  I was awake as they put the things on me, and the oxygen apparatus in my nose.  The nurse gave me the meds...and the next thing I knew...I was waking up in recovery.  Shortly there after I was able to go home.  I was not in much pain at time.

But several hours later the pain started to come as the local anesthesia wore off.  I was in A lot of pain.  My chest hurt.  It was awful.  I had to take my pain meds, every 4 -6 hours.  I could not get comfortable.  I had a hard time sleeping as I usually sleep on my right side or my stomach.  I was not happy. 

A very Important Surgery!

Has my cancer spread is the big question.  Do I have cancer in my lymph nodes?  Today I had surgery to see if the cancer has metastasized into my lymph nodes.  This is very common in breast cancer.  Especially where my tumor is located, so close to my arm pit area. 

Mom and dad picked me up super early, as I had to be at the hospital at 9:00 am for pre-surgery.  I had to stop eating 12:00am.  I woke up ready for the surgery.  I am an old pro at surgery.  I was not really nervous.  Not even worried to if they were going to find something. I felt confident they wouldn't.  Well....I think really I was not thinking about the results. I was just "doing" the surgery. 

Pre-op was fine, a bazillion nurses, doctors, med students, residents, etc, came in and out of the little cubicle after you are changed into your hospital gown, given a few warn blankets and a lovely "hat" to wear.  They all asked the same or similar questions.  (what meds are you taking, what is your name and bith date, when was the last time you ate and took your meds....)

My doctor came in, and she was really nice, Dr Cocilovo.  A lot different impression than I had the first time.  About 10 - 15 min after I saw her I was being wheeled into the operating room.  After that I don't remember anything until I woke up.  I woke up to a sweet nurse who asked if I wanted anything to drink.  She gave me water, asked my pain level from 1 - 10 and gave me some pain meds.  She did this several times.  It was here I learned the good news that I had no cancer cells in my lymph nodes!!  YAY, I cried happy tears!!  I asked the nurse if I could give her a hug I was so happy.  I did not realize how much I really cared until then.  Of course I cared, but I think it hit me.  :-)  Another 15 - 20 min I was moved to where I could see my parents and then another 15 min I was able to go home.

Now, I was told I could only eat (chicken soup) afterwards, but I wanted Popeye's and mashed potatoes.  And that is what I made my dad get me.  I ate it too, and did not get sick!!  HAHA!!  :-)
Mom and dad stayed with me for a while.  Then I was able to relax. 

I set up an appointment for the next day to get my hair cut, because I have been told it is better to have it short when you start to lose it.   My hair dressor is awesome and I knew he would take care of me.

First Appt with the Oncological Surgeon

I did not know what to expect from this appointment or what it was for.  I was going into it thinking this is where I would find out what my treatment options I had are for this cancer.  I had filled out all of the forms ahead of time, and bought a pink notebook and a pink breast cancer pen.  I decorated my notebook with stickers of stars, hearts, angels, butterflies, and crosses.  It is my Breast Cancer Notebook where I can put all the information and keep everything together. 

My mom and dad came to the appointment with me.  They met me at the office.  Going into see Dr. Cocilovo was the first time I cried as a result of this diagnosis.  She was going over the probable treatment and the procedures and meetings I needed to still set up.  When she was talking she told me that due to the Chemo that I was most likely going to become infertile.  This is when I lost it.  I just started crying.  I can deal with Cancer.  I can deal with all the appointments and the pain, etc.  But I did not want to become infertile. 

Ever since I  can remember, more than anything I want in my life is to be able to have my own birth child.  I did not want to lose that opportunity because of this.  I know that I could always adopt.  I was an adoption placement worker for goodness sake, I also wrote home studies for other people who wanted to adopt.  Those children are special and those families are special.  But I did not want to lose this opportunity to give birth and raise a child from birth. Adopting an infant would be rare and too hard.  I know, I have been on the placement side.

I left the meeting overwhelmed, and not sure I liked the treatment procedure.  I felt it was to aggressive given the fact that we did not know it was in my lymph nodes or not, and that most people I talked to had surgery first and then chemo, or no chemo at all.  No chemo would protect my fertility. 

I looked up more information on the web, called friends, ended up working on trying to schedule a second opinion appt with the Doctors at Georgetown.  They needed all of my records and notes from the previous doctors.  I called and had this stuff sent to Georgetown Lombardi Cancer Center.